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Index » Radio Paradise/General » General Discussion » Autism Issues Page: 1, 2, 3 ... 19, 20, 21  Next
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Manbird
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Posted: May 18, 2013 - 1:24pm

">Temple Grandin on DSM-5: “Sounds like diagnosis by committee”

When it comes to autism, Grandin argues we're paying too much attention to labels — and not enough to individuals


kurtster
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Posted: May 12, 2013 - 2:24pm

 kctomato wrote:
My son is currently doing some vision therapy.  Some of it has had an interesting effect.

One of the first things noticeable from my son's vaccine injury was a change in his gate. His walking became clumsy and he would fall and run into things. His coordination is a little better but he still will not walk in straight lines, I kind of wish I would have video taped the first time response compared to his "normal". When he wears these prism glasses in a certain orientation he will walk in a straight line. The first time he did it he had a look of amazement on his face. 

Part of the therapy involves him wearing these glasses and forcing his brain to make new associations, After he stops wearing them he is disoriented again for a certain amount of time. The doc says that is part of the process. I liken it to wearing a pair of skates, for someone who doesn't wear them that much, for several hours and then taking off the skates. For a short time your brain still "thinks" the skates are on.

We are really just starting this therapy. We did so because of several issues, such as the gate and reading "habits". In the past I have noticed that when he wears yellow colored sunglasses he becomes calm. He actually likes having them on. If you put on the regular grey/blue tint glasses it has no effect. In fact he immediately takes them off. I don't know if that really means much more than the world has more interest in the yellow shade but it really helps in the cars to calm him down and stop the echolalia  - which can be really annoying on long trips.

 

Vision seems to be a major part of the problem as I have come to understand some of these issues over the years.  Prisms and different lense colors are used in many instances and are very helpful where other things are not.

I have refered many people and some here to the Irlen Insitute for help with using colors to help for dyslexia which can come with autism or be a stand alone issue.  If you go to the website you will see several different colored boxes on the right upper part of the header directly under the little girl.  Click on them and you will change the background color of the page to see a virtual demonstration of the effect of the different colors.  For a non affected individual, they won't really notice anything, but someone affected could find it very helpful and quite profound.  On the left there is a spot that will take you to examples of vision distortions.

Over the years, I have seen some kids come in wearing these special tints and their parents have spoken about the marvels of the treatment.

Prisms are a separate treatment.  Most commonly used for people with eye muscle problems and double vision.  Prisms will pull the eyeball to aim at a certain direction to get the two eyes to work together, rather than separately.  A neuro ophthamologist is one who specializes in this condition and usually treats kids the most.  There are some age related treatments for things like amblyopia as well.

Can't help with the autism part itself, but on the vision therapies I can help and offer some explanations as to what is going on and to a certain extent, why.

Here to help if needed.




kctomato
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Posted: May 12, 2013 - 10:14am

I liked the "he's snugly" part.

The "experts" say they aren't capable of that. {#Rolleyes}

Or humor,

I am not buying any of that. Just an hour ago my son suddenly ran to get in the truck (something that usually requires effort). When I got in the truck he looked at me, ripped a big fart and started laughing hysterically,


Xeric
Oh! This!
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Posted: May 12, 2013 - 7:26am

 ScottFromWyoming wrote:
On facebook, our friends in California (we were in their wedding, they were in ours) posted:
 
 
 
This is my son and he has autism. He is making sukiyaki donburi for our dinner tonight, dogs freak him out, he knows over 20 alphabets, he needs extra supervision, he can multiply numbers faster than you can type them in a calculator, he is also very snugly . I never thought I'd have a kid with autism and I had no idea what autism actually was. Also the biggest gift in his life is his younger sister. A big thanks to everyone who has contributed to his progress.
 
 



 
What a great description.  You go, kid!
 
ScottFromWyoming
I eat pints.
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Posted: May 12, 2013 - 6:50am

On facebook, our friends in California (we were in their wedding, they were in ours) posted:
 
 
 
This is my son and he has autism. He is making sukiyaki donburi for our dinner tonight, dogs freak him out, he knows over 20 alphabets, he needs extra supervision, he can multiply numbers faster than you can type them in a calculator, he is also very snugly . I never thought I'd have a kid with autism and I had no idea what autism actually was. Also the biggest gift in his life is his younger sister. A big thanks to everyone who has contributed to his progress.
 
 


hippiechick
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Posted: Apr 5, 2013 - 12:03pm

 kctomato wrote:
My son is currently doing some vision therapy.  Some of it has had an interesting effect.

One of the first things noticeable from my son's vaccine injury was a change in his gate. His walking became clumsy and he would fall and run into things. His coordination is a little better but he still will not walk in straight lines, I kind of wish I would have video taped the first time response compared to his "normal". When he wears these prism glasses in a certain orientation he will walk in a straight line. The first time he did it he had a look of amazement on his face. 

Part of the therapy involves him wearing these glasses and forcing his brain to make new associations, After he stops wearing them he is disoriented again for a certain amount of time. The doc says that is part of the process. I liken it to wearing a pair of skates, for someone who doesn't wear them that much, for several hours and then taking off the skates. For a short time your brain still "thinks" the skates are on.

We are really just starting this therapy. We did so because of several issues, such as the gate and reading "habits". In the past I have noticed that when he wears yellow colored sunglasses he becomes calm. He actually likes having them on. If you put on the regular grey/blue tint glasses it has no effect. In fact he immediately takes them off. I don't know if that really means much more than the world has more interest in the yellow shade but it really helps in the cars to calm him down and stop the echolalia  - which can be really annoying on long trips.

 
Interesting! Keep us informed of this!

(Not to be picky, but the correct spelling is "gait.")
meower

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Posted: Apr 5, 2013 - 11:59am

 meower wrote:


wow. Very interested in hearing more about this.

 

http://www.autism.com/index.php/treating_vision

Wow!
meower

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Posted: Apr 5, 2013 - 11:56am

 kctomato wrote:
My son is currently doing some vision therapy.  Some of it has had an interesting effect.

One of the first things noticeable from my son's vaccine injury was a change in his gate. His walking became clumsy and he would fall and run into things. His coordination is a little better but he still will not walk in straight lines, I kind of wish I would have video taped the first time response compared to his "normal". When he wears these prism glasses in a certain orientation he will walk in a straight line. The first time he did it he had a look of amazement on his face. 

Part of the therapy involves him wearing these glasses and forcing his brain to make new associations, After he stops wearing them he is disoriented again for a certain amount of time. The doc says that is part of the process. I liken it to wearing a pair of skates, for someone who doesn't wear them that much, for several hours and then taking off the skates. For a short time your brain still "thinks" the skates are on.

We are really just starting this therapy. We did so because of several issues, such as the gate and reading "habits". In the past I have noticed that when he wears yellow colored sunglasses he becomes calm. He actually likes having them on. If you put on the regular grey/blue tint glasses it has no effect. In fact he immediately takes them off. I don't know if that really means much more than the world has more interest in the yellow shade but it really helps in the cars to calm him down and stop the echolalia  - which can be really annoying on long trips.

 

wow. Very interested in hearing more about this.
kctomato
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Zodiac: Aquarius
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Posted: Apr 5, 2013 - 10:26am

My son is currently doing some vision therapy.  Some of it has had an interesting effect.

One of the first things noticeable from my son's vaccine injury was a change in his gate. His walking became clumsy and he would fall and run into things. His coordination is a little better but he still will not walk in straight lines, I kind of wish I would have video taped the first time response compared to his "normal". When he wears these prism glasses in a certain orientation he will walk in a straight line. The first time he did it he had a look of amazement on his face. 

Part of the therapy involves him wearing these glasses and forcing his brain to make new associations, After he stops wearing them he is disoriented again for a certain amount of time. The doc says that is part of the process. I liken it to wearing a pair of skates, for someone who doesn't wear them that much, for several hours and then taking off the skates. For a short time your brain still "thinks" the skates are on.

We are really just starting this therapy. We did so because of several issues, such as the gate and reading "habits". In the past I have noticed that when he wears yellow colored sunglasses he becomes calm. He actually likes having them on. If you put on the regular grey/blue tint glasses it has no effect. In fact he immediately takes them off. I don't know if that really means much more than the world has more interest in the yellow shade but it really helps in the cars to calm him down and stop the echolalia  - which can be really annoying on long trips.


Manbird
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Posted: Apr 4, 2013 - 3:19pm

 Coaxial wrote:

Are you eyeballing me?

 
Deep breaths.
Coaxial
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Posted: Apr 4, 2013 - 2:56pm

 Manbird wrote:
Every month should be neurotypical awareness month. 
   

 
Are you eyeballing me?
Manbird
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Posted: Apr 4, 2013 - 2:46pm

Every month should be neurotypical awareness month. 
   



meower

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Posted: Mar 17, 2013 - 5:02am

 Skaterella wrote:


I've dealt with this frequently with Ben.  At first, I didn't have the guts to confront people who were cruel to him.  But at a certain point I stood up for him. We were at a pizza shop -we got there early and there weren't many people there.  A family came in & sat next to us & ben was rocking & he bumped the woman's chair.  she kept shooting him dirty looks.  We left and walked about a block away & I turned around & went back & I told her that I noticed he seemed to be bothering her & that he was autistic —he wasn't just being a nudge.  She told me her neice has Down's Syndrome ( and I suppose her best friend is black too...)  Adults are the meanest to him.  He's also bipolar so things used to get pretty wacky for him at times (he's much more stable now.)  One time we were in a bakery & he bumped into a grown man who said something nasty to him so Ben went and stood in the corner of the place rocking & letting loose a litany of profanity one would expect of a person leaving on the street.  The guy continued to make comments about ben to the cashier (ie-there's something wrong with that kid...) what a f*ckin genius.  you figured out maybe he wasn't just a bad kid??  anyway its really tough because you can't live in a bubble & you try to be respectful of other people but often they are just mean right off the bat.  I think it would be helpful if we could move from a place where "tolerance" is what is expected of neurotypicals when they run across the rest of us to a place where compassion is what is expected.  Some compassion and understanding on both sides of the issue would go far I think.

 

it's hard enough for some people to tolerate typically developing kids in eateries and such. Heck people can't tolerate other people!
Sorry you've had to deal with this Skate.     
  
MrsHobieJoe
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Posted: Mar 16, 2013 - 11:37pm

 Manbird wrote:
   
Interesting article. The author took a lot of flak for her
previous writing on autism but this article brings up
some interesting and disturbing issues.

Where Should Special Needs Kids Be Special?
   
   
 



I found the comments below the article rather depressing though.


Skaterella

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Posted: Mar 16, 2013 - 7:02pm

 Manbird wrote:
   
Interesting article. The author took a lot of flak for her
previous writing on autism but this article brings up
some interesting and disturbing issues.

Where Should Special Needs Kids Be Special?
   
   
 

I've dealt with this frequently with Ben.  At first, I didn't have the guts to confront people who were cruel to him.  But at a certain point I stood up for him. We were at a pizza shop -we got there early and there weren't many people there.  A family came in & sat next to us & ben was rocking & he bumped the woman's chair.  she kept shooting him dirty looks.  We left and walked about a block away & I turned around & went back & I told her that I noticed he seemed to be bothering her & that he was autistic —he wasn't just being a nudge.  She told me her neice has Down's Syndrome ( and I suppose her best friend is black too...)  Adults are the meanest to him.  He's also bipolar so things used to get pretty wacky for him at times (he's much more stable now.)  One time we were in a bakery & he bumped into a grown man who said something nasty to him so Ben went and stood in the corner of the place rocking & letting loose a litany of profanity one would expect of a person leaving on the street.  The guy continued to make comments about ben to the cashier (ie-there's something wrong with that kid...) what a f*ckin genius.  you figured out maybe he wasn't just a bad kid??  anyway its really tough because you can't live in a bubble & you try to be respectful of other people but often they are just mean right off the bat.  I think it would be helpful if we could move from a place where "tolerance" is what is expected of neurotypicals when they run across the rest of us to a place where compassion is what is expected.  Some compassion and understanding on both sides of the issue would go far I think.
Manbird
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Posted: Mar 16, 2013 - 10:25am

   
Interesting article. The author took a lot of flak for her
previous writing on autism but this article brings up
some interesting and disturbing issues.

Where Should Special Needs Kids Be Special?
   
   

kysmet
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Posted: Feb 26, 2013 - 8:03pm

 meower wrote:
She's great. Her book are awesome too.



 
I had recorded the HBO movie a long time ago but never got around to watching it.
meower

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Posted: Feb 26, 2013 - 4:03am

She's great. Her book are awesome too.


ScottFromWyoming
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Posted: Feb 25, 2013 - 9:23pm

 Manbird wrote:

Sounds great - glad you guys were able to see her.

 
She said a lot of things that, like Justine said, a lot of teachers need to hear. And it was cool to watch her work. Some obvious problems when you're looking for them, but a pretty engaging speaker overall. Her powerpoint and meticulous notes on the podium did a good—but not at all perfect—job of keeping her on track... she went of on some hilarious tangents. Hilarious not because of her behavior but because she's actually very funny. She sees something interesting in the world and she can describe it as she sees it and make you get how cool it is or how funny it is. And sometimes she just makes an observation that's funny because she doesn't mince words and it's startling and she knows it. She's not a bit unaware of what she's saying and how it will be interpreted now. Maybe in the distant past, she was.

Her delivery is machine-gun bam bam bam and off on the next slide bam bam bam with an occasional aside to illustrate how her mind works using something from the news, then off on some other news thing bam bam bam and she was saying how she needed to understand something she'd read all sorts of newspapers until she got it. Since her mind sees in pictures and words (in her words) are always incomplete compared with a picture, it takes a lot of reading to understand some ideas so she was trying to figure out the stock market crash and credit default swaps and it took her 2 weeks' worth of Wall Street Journals to understand what a credit default swap was. "Fraud," she muttered under her breath, and people laughed and applauded and began paying even closer attention even though everyone in the place was tuned in pretty well to begin with. So it was cool to see her.
 
But to absorb her info, really? YouTube. Hands down. If I had the video of tonight's talk, I'd watch it right now to try to get more of the stuff to imprint because all I retained was maybe 2% and that's leaving me as I type  
Manbird
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Location: Santa Rosa, CA
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Posted: Feb 25, 2013 - 8:06pm

 JustineFromWyoming wrote:

FULL auditorium at our high school. She was brought here by our local community college. We took both kids. She gave her talk dealing with her autism and how different minds work. She also has a talk she gives on animal production, but she was to give that earlier today at the college.

I don't know what to say about it. I could have occupied her time for an hour but she was mobbed, signing books, so we didn't even try. The principal from our children's school sat across the aisle from us. I hope he 'got' more than a few things said by Dr. Grandin in regards to Charlie and some of the difficulties he's experienced, is experiencing. I didn't see his classroom teacher there and I can say she lost out if she wasn't there. She has a number of those quirky kids in her class and seems to struggle in managing and inspiring them. It's her first time teaching second grade in 28 years.

Anyway, I don't think that the approaches Scott and I take with our children are wrong. We're not coddling, but we're advocating. We remind them daily of manners, ethics and value of work. Dr. Grandin focused on those areas as well. I appreciate hearing that from her. She is certainly fascinating and I admire her tenacity. I also greatly respect her mother and her teachers that inspired her. 

 
Sounds great - glad you guys were able to see her.
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