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Index » Radio Paradise/General » General Discussion » Other Medical Stuff Page: 1, 2, 3 ... 43, 44, 45  Next
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kcar

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Posted: Feb 22, 2017 - 7:10pm

 DaveInVA wrote:
 Some details:
This started about 20 years ago when I had an arterial spasm likely caused by the job stress I was under at the time. The Doc called the arterial spasm a small stroke. It was like crimping a garden hose and releasing it resulting in a momentary high bp in the small vessels feeding the retinas in my eyes. This blew out hundreds of them causing leaks. The vision damage was immediately noticeable in both eyes at the same time. These vessels are to small for red corpuscles to fit through so scabs can't form to seal them. The plasma leaks contain high protein which over time causes the layers of the retina to delaminate and separate causing permanent vision problems and making the eyes very fragile. Having the cataract surgery seems to have disturbed things enough to cause multiple delaminations to occur in both eyes. This would have happened sooner or later anyways but it might have been years later. The Doc held off doing the cataract surgery until after a full year of no noticeable activity occurred hoping it would be stable enough to take the abuse of the surgery.
I'd be open to about anything. Usually they use laser cauterization to seal the leaks before more damage happens but every time they fire the laser it causes small dead spots so its only practical if you only have a few leaks and not hundreds.

 

Wow. Dave, I had no idea you were dealing with this. Miamizsun's link might be very helpful: I know a lot of research is being done on diseases of the eye that affect the retina, including retinitis pigmentosa and macular degeneration. 

I don't know if either of these links would help you but I hope they give you some leads and some hope:

https://www.technologyreview.com/s/602625/gene-therapy-in-us-is-on-track-for-approval-as-early-as-next-year/

 " Spark Therapeutics is within striking distance of a landmark green light from the FDA for its treatment for certain forms of blindness, known as inherited retinal dystrophies."


https://www.technologyreview.com/s/603561/companies-plan-tests-of-optogenetic-goggles-to-restore-sight/

"Two startup companies say they plan to start clinical trials to treat blindness by combining an emerging technology called optogenetics with high-tech goggles that can beam light into the eye.

The companies, GenSight Biologics of Paris and Bionic Sight, a startup out of Weill Cornell Medical College in New York, both say a combination of wearable electronics and gene therapy has a chance to restore vision by re-creating the retina’s ability to sense light.

Both companies are aiming to help patients with a degenerative eye disease called retinitis pigmentosa, which destroys light-sensing cells in the retina. If the approach works, it could in theory be used to treat any type of retinal disease that involves the loss of these cells, called photoreceptors."





kurtster
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Zodiac: Libra
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Posted: Feb 22, 2017 - 6:39pm

One of the worst things that could have happened to the eyeglass bizness is well underway.

The Luxottica Essilor Mega-Merger: Company Overviews

We, in the industry have been dreading this for many years.  Now the largest lens company in the world is merging with the largest frame company in the world, which also owns one of the largest eye insurance plans in the US, Eyemed.  This may be the fatal blow to small independent operations.  How do you compete with the company that now makes both the frames and lenses that you sell and has their own stores and in house insurance company ?  The other larger US insurance outfit VSP now also has its own lenses, frames and stores.

Rollerball has arrived to my profession ... sigh ... glad I'm old ... sigh ... the consumer will lose, too. 
kurtster
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Posted: Jul 31, 2016 - 8:51am

 miamizsun wrote:

dave i'd contact this organization

http://www.blindness.org/blog/index.php/category/research/stem-cell/

you may qualify for study or treatment

especially if you're an extreme case

regards

 
Bookmarked !

That is really cool and good to know for what I do.  Anything Gordon Gund is associated with is the real deal.  A hometown hero as the former long term owner of the Cavs.  His is a great story in itself.
DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Posted: Jul 31, 2016 - 8:33am

 miamizsun wrote:

dave i'd contact this organization

http://www.blindness.org/blog/index.php/category/research/stem-cell/

you may qualify for study or treatment

especially if you're an extreme case

regards

 
Thanks, I will definitely check them out....
miamizsun

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Location: (3261.3 Miles SE of RP)
Gender: Male


Posted: Jul 31, 2016 - 8:29am

 DaveInVA wrote:
 Some details:
This started about 20 years ago when I had an arterial spasm likely caused by the job stress I was under at the time. The Doc called the arterial spasm a small stroke. It was like crimping a garden hose and releasing it resulting in a momentary high bp in the small vessels feeding the retinas in my eyes. This blew out hundreds of them causing leaks. The vision damage was immediately noticeable in both eyes at the same time. These vessels are to small for red corpuscles to fit through so scabs can't form to seal them. The plasma leaks contain high protein which over time causes the layers of the retina to delaminate and separate causing permanent vision problems and making the eyes very fragile. Having the cataract surgery seems to have disturbed things enough to cause multiple delaminations to occur in both eyes. This would have happened sooner or later anyways but it might have been years later. The Doc held off doing the cataract surgery until after a full year of no noticeable activity occurred hoping it would be stable enough to take the abuse of the surgery.
I'd be open to about anything. Usually they use laser cauterization to seal the leaks before more damage happens but every time they fire the laser it causes small dead spots so its only practical if you only have a few leaks and not hundreds.

 
dave i'd contact this organization

http://www.blindness.org/blog/index.php/category/research/stem-cell/

you may qualify for study or treatment

especially if you're an extreme case

regards
DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Jul 30, 2016 - 7:11am

 miamizsun wrote:
 

dave i'm sorry to hear this

if you pm me or post the details i'd be happy to do some research for you

and would you be open to something cutting edge or experimental?

peace

  Some details:
This started about 20 years ago when I had an arterial spasm likely caused by the job stress I was under at the time. The Doc called the arterial spasm a small stroke. It was like crimping a garden hose and releasing it resulting in a momentary high bp in the small vessels feeding the retinas in my eyes. This blew out hundreds of them causing leaks. The vision damage was immediately noticeable in both eyes at the same time. These vessels are to small for red corpuscles to fit through so scabs can't form to seal them. The plasma leaks contain high protein which over time causes the layers of the retina to delaminate and separate causing permanent vision problems and making the eyes very fragile. Having the cataract surgery seems to have disturbed things enough to cause multiple delaminations to occur in both eyes. This would have happened sooner or later anyways but it might have been years later. The Doc held off doing the cataract surgery until after a full year of no noticeable activity occurred hoping it would be stable enough to take the abuse of the surgery.
I'd be open to about anything. Usually they use laser cauterization to seal the leaks before more damage happens but every time they fire the laser it causes small dead spots so its only practical if you only have a few leaks and not hundreds.


miamizsun

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Location: (3261.3 Miles SE of RP)
Gender: Male


Posted: Jul 30, 2016 - 6:39am

 DaveInVA wrote:
An Update to my last post here. 

dave i'm sorry to hear this

if you pm me or post the details i'd be happy to do some research for you

and would you be open to something cutting edge or experimental?

peace


DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Jul 30, 2016 - 6:26am

 kurtster wrote:

{#Hug}  The cataracts uncorrected would have had the same net effect.  Diabetes is the one disease not of the eye that has the most profound effect on the eye.  At least you don't have that to worry about.  There are some eye vitamins that might help slow things down, but surely won't hurt.

Time for vigorous eye protection from the sun with polaroid lenses a must for bright outdoor days, even if its the fit over type.  I would recommend brown for the blue blocking properties and the higher contrast they offer.

These may be of help in other occasions such as indoors or cloudy days.  And they make a wide variety of decent fit overs as they are called.  You should be able to find them at most optical shops.  You do need to try them on to make sure they fit properly.  Ask for them by name.

Cocoons 

If they help. you can get your regular clear lenses tinted that color for full time use. There are actually two standard tint colors for this purpose.  Do check with your doctor before the vitamins first though.  

HTH 



 

My vision lasted longer than I was originally told. When this happened I was living in Petersburg and was seeing a eye doc from the University of Richmond. He did a Intravenous Fluorescein with his class watching and he told them what they were seeing was not typical and is the worst case you will ever see. He then told me I'd be legally blind by the time I was 55. So its just taking longer than he thought.


kurtster
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Posted: Jul 29, 2016 - 6:36pm

 DaveInVA wrote:

Its all I can do. I can't make out detail in peoples faces anymore  in normal lighting.

 
{#Hug}  The cataracts uncorrected would have had the same net effect.  Diabetes is the one disease not of the eye that has the most profound effect on the eye.  At least you don't have that to worry about.  There are some eye vitamins that might help slow things down, but surely won't hurt.

Time for vigorous eye protection from the sun with polaroid lenses a must for bright outdoor days, even if its the fit over type.  I would recommend brown for the blue blocking properties and the higher contrast they offer.

These may be of help in other occasions such as indoors or cloudy days.  And they make a wide variety of decent fit overs as they are called.  You should be able to find them at most optical shops.  You do need to try them on to make sure they fit properly.  Ask for them by name.

Cocoons 

If they help. you can get your regular clear lenses tinted that color for full time use. There are actually two standard tint colors for this purpose.  Do check with your doctor before the vitamins first though.  

HTH 




NoEnzLefttoSplit
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Posted: Jul 29, 2016 - 2:47pm

 DaveInVA wrote:
An Update to my last post here.

I saw a specialist eye doc from Duke University yesterday. My left eye had also started failing in the past 2 weeks. This was the soonest he could see me as he has been on vacation for a month.
Good news the "cyst" is gone. It was a bubble in the retina caused by fluid getting under it and pushing it up and it resolved on its own. Was likely caused by the abuse the eye got during cataract surgery as the Doc had a hard time centering the new lens. These bubbles happen about 15% of the time after cataract surgery and usually self resolve. The bad news is my vision got even worse instead of better and both eyes are now as bad as before the cataract surgery, So he did a dye scan. Turns out my vision is failing because I have actual dead spots in my eyes. The right eye its in the center of vision, a very large portion of it. My left eye its in the upper left vision mostly. This was likely caused when the cataract surgery disturbed "fragile" areas originally caused by a stroke I had about 20 years ago. The worse news is the scans show many other areas decaying. The even worse news it there is nothing they can do about it except hope it takes a long time for the other areas to die out. The Doc said in his 38 years in this business he has never seen damage as bad as what I have. This is similar damage to what some diabetics get except it rarely happens in both eyes or to this extent. He said there are "hundreds" of dying areas in both eyes.  I am not diabetic (yet anyways) and I originally developed eye problems in both eyes the same day 20 years ago after a small stroke. Before the cataract surgery this same Doc thought this had stabilized and after a further year of no more activity he ok'd the cataract surgery. He now says this would have happened anyways eventually even without the cataract surgery but it might have taken a lot longer to happen. I guess my eyes were just to fragile from the previous damage. But I was already at a point where my vision could have kept me from renewing my drivers license. So now its back there again and will only get worse and never will get better again. What fun.

 
sorry to hear that Dave.. I often wonder what I would do in worst-case scenarios (guess a lot of us do).. I would find it really hard not being able to read, share thoughts using a visual medium. To be honest, that would freak me out. I hope you find a way to still get what you need, what you want, despite it all.


DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Jul 29, 2016 - 9:03am

 black321 wrote:

Sorry to hear that, but try to enjoy what you still have.

 
Its all I can do. I can't make out detail in peoples faces anymore  in normal lighting.
black321
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Posted: Jul 29, 2016 - 8:52am

 DaveInVA wrote:
An Update to my last post here.

I saw a specialist eye doc from Duke University yesterday. My left eye had also started failing in the past 2 weeks. This was the soonest he could see me as he has been on vacation for a month.
Good news the "cyst" is gone. It was a bubble in the retina caused by fluid getting under it and pushing it up and it resolved on its own. Was likely caused by the abuse the eye got during cataract surgery as the Doc had a hard time centering the new lens. These bubbles happen about 15% of the time after cataract surgery and usually self resolve. The bad news is my vision got even worse instead of better and both eyes are now as bad as before the cataract surgery, So he did a dye scan. Turns out my vision is failing because I have actual dead spots in my eyes. The right eye its in the center of vision, a very large portion of it. My left eye its in the upper left vision mostly. This was likely caused when the cataract surgery disturbed "fragile" areas originally caused by a stroke I had about 20 years ago. The worse news is the scans show many other areas decaying. The even worse news it there is nothing they can do about it except hope it takes a long time for the other areas to die out. The Doc said in his 38 years in this business he has never seen damage as bad as what I have. This is similar damage to what some diabetics get except it rarely happens in both eyes or to this extent. He said there are "hundreds" of dying areas in both eyes.  I am not diabetic (yet anyways) and I originally developed eye problems in both eyes the same day 20 years ago after a small stroke. Before the cataract surgery this same Doc thought this had stabilized and after a further year of no more activity he ok'd the cataract surgery. He now says this would have happened anyways eventually even without the cataract surgery but it might have taken a lot longer to happen. I guess my eyes were just to fragile from the previous damage. But I was already at a point where my vision could have kept me from renewing my drivers license. So now its back there again and will only get worse and never will get better again. What fun.

 
Sorry to hear that, but try to enjoy what you still have.
DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Jul 29, 2016 - 8:47am

An Update to my last post here.

I saw a specialist eye doc from Duke University yesterday. My left eye had also started failing in the past 2 weeks. This was the soonest he could see me as he has been on vacation for a month.
Good news the "cyst" is gone. It was a bubble in the retina caused by fluid getting under it and pushing it up and it resolved on its own. Was likely caused by the abuse the eye got during cataract surgery as the Doc had a hard time centering the new lens. These bubbles happen about 15% of the time after cataract surgery and usually self resolve. The bad news is my vision got even worse instead of better and both eyes are now as bad as before the cataract surgery, So he did a dye scan. Turns out my vision is failing because I have actual dead spots in my eyes. The right eye its in the center of vision, a very large portion of it. My left eye its in the upper left vision mostly. This was likely caused when the cataract surgery disturbed "fragile" areas originally caused by a stroke I had about 20 years ago. The worse news is the scans show many other areas decaying. The even worse news it there is nothing they can do about it except hope it takes a long time for the other areas to die out. The Doc said in his 38 years in this business he has never seen damage as bad as what I have. This is similar damage to what some diabetics get except it rarely happens in both eyes or to this extent. He said there are "hundreds" of dying areas in both eyes.  I am not diabetic (yet anyways) and I originally developed eye problems in both eyes the same day 20 years ago after a small stroke. Before the cataract surgery this same Doc thought this had stabilized and after a further year of no more activity he ok'd the cataract surgery. He now says this would have happened anyways eventually even without the cataract surgery but it might have taken a lot longer to happen. I guess my eyes were just to fragile from the previous damage. But I was already at a point where my vision could have kept me from renewing my drivers license. So now its back there again and will only get worse and never will get better again. What fun.
DaveInVA
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Jun 23, 2016 - 3:09pm

A couple weeks ago I started seeing my eyesight getting worse in my right eye in addition to the glare problem that was only in my right eye after my cataract surgery. I am also seeing a pulsating yellow spot right in the center of vision with that eye along with distortions in the center. So the Doc that did the surgery sent me to a specialist from Duke today. Turns out  I have higher than normal pressure in that eye but what is causing it is a cyst growing on my retina right in the middle of vision. Thats causing the pulsating yellow spit. Next I have to get a dye scan to find out how bad the cyst is. He said some can cause bad leaks. He also said it will never get better than what it is now as the cyst has already caused permanent damage.I may also have to be on a med to keep it from growing but he doesn't like using it as it has bad side effects. Well I got a couple of decent weeks vision out of that eye after surgery anyways.
DaveInVA
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Posted: May 5, 2016 - 2:32pm

Just got my prescription bifocals. I can see 20/20 using both eyes with them, 20/40 without the glasses. Now just have to get used to the damn things. Keeps making me think there is something stuck in my eyes because of the abruptness between the 2 halves.
kurtster
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Posted: Apr 26, 2016 - 12:31pm

 DaveInVA wrote:
Just got back from the eye doc. My "official" new eyesight is 20/40 both eyes but I could read some of of the 20/20 line using both eyes.  He deemed my eyes stable enough to give me a glasses prescription. Turns out Medicare pays 80% of the first pair of glasses after cataract surgery and  the cheapie online glasses place I was recommended by friends doesn't deal with Medicare so I am having my first pair made by the eye doc's lab. They will just be crappy frames with lined bifocals as thats all Medicare will pay 80% of. They wanted $104 extra for progressive bifocals and Medicare wont pay any of that.

And he wants to wait 4 months before using the Yag laser to remove the capsule wrinkle in my right eye that is causing a diagonal  white line with headlights, street lamps etc. He is still hoping it will clear up on its own.

 
That's pretty good news.  20/40 is the minimum acuity to avoid a restriction on your driver's license.

Do not order glasses online, especially anything multi focal.  You can get single vision lenses and get lucky, but multi focals need very accurate measurements.  They say you can do it yourself in a mirror, right ...  I've seen the results, just sayin'.

Then try getting someone to adjust them for you, especially when you say that you bought them on line.  We get $20 for adjusting Warby's and that's friendly.  I see so many frames that do not fit the person who bought them.  They don't know what to look for and what to avoid. 
DaveInVA
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Location: In a hovel in effluent Damnville, VA
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Posted: Apr 26, 2016 - 11:29am

Just got back from the eye doc. My "official" new eyesight is 20/40 both eyes but I could read some of of the 20/20 line using both eyes.  He deemed my eyes stable enough to give me a glasses prescription. Turns out Medicare pays 80% of the first pair of glasses after cataract surgery and  the cheapie online glasses place I was recommended by friends doesn't deal with Medicare so I am having my first pair made by the eye doc's lab. They will just be crappy frames with lined bifocals as thats all Medicare will pay 80% of. They wanted $104 extra for progressive bifocals and Medicare wont pay any of that.

And he wants to wait 4 months before using the Yag laser to remove the capsule wrinkle in my right eye that is causing a diagonal  white line with headlights, street lamps etc. He is still hoping it will clear up on its own.
DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Apr 13, 2016 - 2:14pm

 kurtster wrote:

It may very well do that.  The implants are folded up prior to insertion and opened once inside.  Ideally there are no creases in the lens such as what you may have.  I doubt very seriously that the brain would overlook such a prominent item like the crease or fold.  It sounds like it is resolving itself.  Hopefully that is what is going on.

 
The crease is in the "capsule" around the new lens. He had more trouble positioning the lens in this eye than the other. That is likely what caused it. If its not gone by 4/26 they are setting me up to get it zapped with a YAG laswer
kurtster
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Posted: Apr 13, 2016 - 2:10pm

 DaveInVA wrote:
The line in my right eye when looking at headlights, streetlights etc seems to be slowly getting better. Either that my brain is trying to tune it out. Hopefully it will heal on its own before my next appointment.

 
It may very well do that.  The implants are folded up prior to insertion and opened once inside.  Ideally there are no creases in the lens such as what you may have.  I doubt very seriously that the brain would overlook such a prominent item like the crease or fold.  It sounds like it is resolving itself.  Hopefully that is what is going on.
DaveInVA
Single, unwanted, unloved eccentric, crusty ol' fart with cats
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Location: In a hovel in effluent Damnville, VA
Gender: Male


Posted: Apr 13, 2016 - 1:57pm

The line in my right eye when looking at headlights, streetlights etc seems to be slowly getting better. Either that my brain is trying to tune it out. Hopefully it will heal on its own before my next appointment.
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